On the advice of our pulmonologist, we’ve been taking C off oxygen for short periods every day, gradually increasing the duration of these O2-free periods. We’re currently up to 60 minutes, after which we measure C’s oxygen levels using a portable testing device.
His oxygen levels are holding steady at 98-100% each time we test. For perspective, that’s how well an individual with very healthy lungs would do!
Our little jester is full of surprises.
And that, to me, is the real point. Whenever I get down, something happens to remind me how lucky I am, how great C is doing. Sure, he has strikes against him, but he has a resilient spirit.
My good friend Sean often says, “C is going to surprise us all, you watch.” I believe he’s right.